February 17, 2025 The Best Source of News, Culture, Lifestyle for Culver City, Mar Vista, Del Rey, Palms and West Los Angeles

NF: Two Million People Live With What?


There are many afflictions that children – especially those on the Westside – suffer. There are the common acronyms, ADD, ADHD, various processing disorders and then there are challenges like NF that upend a family’s world. NF is the result of a single gene mutation, a mutation that occurs once in every 3,000 birth leaving that one child with a tendency to grow tumors on the nerves of their bodies. These pernicious tumors can lead to degrees of some or all of the following; disfigurement; blindness; skeletal abnormalities; dermal, brain, and spinal tumors; loss of limbs; malignancies; and learning disabilities. This condition affects both sexes and all races so can happen to any family.

As Kelly Peterson, the Pacific Palisades mom of a beautiful, spirited two year old with NF1 said, “We had never even heard of NF before our daughter’s diagnosis, and it took us some time to process her diagnosis.”

After researching their first child’s condition, Kelly and Michael Peterson decided to support The Children’s Tumor Foundation, “where we could be of the most use in working towards a cure for NF. They have done incredible work to facilitate scientific breakthroughs, generate awareness, and create a network of NF clinics around the world,” said Kelly Peterson about the organization she and her family support and from which they draw strength.

For the first time this year, the family will participate in the upcoming 7th Annual NF Walk (at CBS Studio Center in Studio City on June 3, 2012). “One of the most distressing aspects of NF is that there is neither an effective treatment nor a cure for this incredibly unpredictable and progressive genetic disorder. Events like this walk help families coping with NF to feel both positive and empowered by participating in the quest for a cure whiling having fun with supportive friends and family who want to help us end NF,†said Peterson.

So whatever battles you fight with your child or for them, I hope that they are not as life altering as the fight to deal with NF

For more information on this disorder: www.ctf.org

For more on the NFWalk: www.nfwalk.org/losangeles

in News
Related Posts

(Video) Enjoy Beach Proximity and Prime Amenities at Ocean View Hotel

February 17, 2025

February 17, 2025

For More Info, Go To Oceanviewsantamonica.com For More Info, Go To https://t.co/RmxV3mgYCs pic.twitter.com/30oSvl7Zvf — Westside Today (@WestsideLAToday) February 17, 2025

Deadly Stabbing Outside Popular Santa Monica Bar on Saturday

February 16, 2025

February 16, 2025

One Man Killed, Another Injured in Early Morning Attack The Bungalow, a popular restaurant and bar in Santa Monica, was...

Iconic Gloria Vanderbilt Estate Hits the Market for the First Time in 72 Years

February 16, 2025

February 16, 2025

Historic Beverly Hills Mansion With Star-Studded Past Listed at $16.5 Million For the first time in 72 years, the historic...

Melrose Avenue Businesses Forced to Close After Floodwaters Inundate Stores

February 16, 2025

February 16, 2025

Heavy Rains Turned Melrose Avenue Into a River, Causing Severe Damage  Heavy rainfall in the Fairfax District caused flooding on...

State Farm Faces Scrutiny Over Emergency Rate Hike Request From State Official

February 16, 2025

February 16, 2025

Commissioner Lara Demands Answers on Financial Stability and Consumer Impact California Insurance Commissioner Ricardo Lara has responded to State Farm’s...

UCLA Suspends Pro-Palestinian Student Groups Following Protest at UC Regent’s Home

February 13, 2025

February 13, 2025

Chancellor Cites Potential Student Code Violations; Student Groups Reject Allegations UCLA has suspended two pro-Palestinian student organizations following a protest...

Flash Flood Warning Issued for Burn Areas, LAFD Officer Swept off Road by Debris

February 13, 2025

February 13, 2025

Storm Damage Closes Pacific Coast Highway, Officials Urge Caution Not even members of the LAFD are being spared from the...

Culver City Police Investigate Disturbing Incident in Culver City Park

February 13, 2025

February 13, 2025

Police Secure Area as Investigation Unfolds on Thursday Morning The Culver City Police Department received a call around 7:23 a.m....

Here are Your Last Minute Ideas if You Still Haven’t Planned Your Valentine’s Day Date

February 13, 2025

February 13, 2025

Luscious Cookies, Delightful Drinks, Full Dinners at Home or In House, We’ve Got Them Okay, maybe you have been a...

Beloved Baldwin Hills Family-Owned Restaurant Post & Beam to Close After 13 Years

February 12, 2025

February 12, 2025

Community Icon Shuts Doors as Baldwin Hills Crenshaw Plaza Redevelopment  In yet another loss for the Los Angeles culinary community,...

Santa Monica Hotel Event Space Offers Affordability, Accessibility

February 12, 2025

February 12, 2025

Elevate Your Events with Versatile Venues and Exceptional Service Coastal stays and eclectic event spaces don’t have to be expensive....

Flour Pizzeria & Cafe to Bring Brooklyn-Style Pizza to Brentwood This Week

February 12, 2025

February 12, 2025

Family-Owned Favorite from the Palisades to Open on San Vicente  Flour Pizzeria & Cafe, a restaurant from Pacific Palisades run...

(Video) The Willows Students Bring a 50-Foot Dragon to Life Through Art and Teamwork

February 12, 2025

February 12, 2025

Kristy Acero, The Willows DK-4th Grade Art teacher, led her students in a large-scale, collaborative project, with each grade creating...

ART& 2025: NeueHouse Unveils Inspiring Lineup Celebrating Feminine Leadership

February 12, 2025

February 12, 2025

Four-Day Event in Venice Beach Explores Creativity, Activism, and Cultural Impact NeueHouse has unveiled the schedule for ART& 2025, a...

LA Attorney Who Represented Rodney King Sentenced to Prison for Tax Evasion Scheme

February 11, 2025

February 11, 2025

Milton C. Grimes Ordered To Serve Time in Prison and Pay Restitution Milton C. Grimes, a longtime Los Angeles attorney,...